Long term Parents' Federation activist Elaine Gee was recently awarded the Bouquet of the Week by the Western Mail and Echo in recognition of her efforts to improve the lives of disabled people and their carers. .

New welfare benefits advisor in CAB

Our Chair, Phil Harding, and Director gave evidence on behalf of families at a recent Scrutiny Committee that was examining proposals to re-commission accommodation support packages across the county.

The Parents Federation is part of a consortia that aims to help families with a disabled child or young adult aged up to 25 but not receiving a social worker input or support.

Your chance to comment of proposed changes

We take data protection seriously and do all we can to adhere to legislation. This means that we will not share your information with other parties unless you give your express permission, subject to the law. New rules called the GDPR come into force soon and we expect to be compliant.

We have a small online survey at 

https://www.smartsurvey.co.uk/s/H6AE3S/

Please take a few minutes to complete at. it will help us to flag up what support is lacking along with any other key issues

So far we have had people tell us they need help with shopping and asked how they can get some sort of priority as a carer and we have had some interesting feedback

A carers ID card can be obtained from Carers UK. If you email them at This email address is being protected from spambots. You need JavaScript enabled to view it. you can apply online.

We have been conducting an online survey to seek the views and experiences of our membership

The findings so far highlight that while many are coping fairly well, some families are starting to need urgent support

Key issues highlighted include the need for some form of carers' ID when shopping, problems with GP services, social isolation and difficulties in keeping relatives healthy and active.

Many are concerned about a premature return to 'normality' and the possible lack of services and support post Covid resulting from inevitable cutbacks and economic slowdown.

Those with younger children will face difficulties when the lock-down is eased as many children have become settled into living at home and out of school routines

the initial findings can be found here. 

Our social media specialist, Hannah, will be giving training lessons in using social media sites (Facebook, Twitter) throughout 2014.

Our Parents Participation Group (Additional Needs) has written to politicians and policy makers expressing our concern that funding is being withdrawn from parental representation across the Cardiff & Vale area.

Our recent event that 'showcased' the diverse housing and accommodation options available to people with a learning disability was well attended with over 50 carers enjoying a morning crammed full of information. Speakers from a variety of providers and agencies explained how different housing options were available, ensuring that all people. regardless of needs, could have a support package designed to enable them to live within their communities. A full report can be found here

We produce quarterly printed newsletters that are sent to all members. If you would like to add an article or comment upon any features that you would like to see in future editions please contact us.

Did you know that as a carer you could be prioritised for a vaccine?

Maybe you are uncertain about having one, see this short clip  for a simple guide

We are updating our records to ensure that carers do not miss out on the many offers for help for carers currently available

A group of professionals in the health team have put together a Facebook group and website for the COVID-19 crisis where we can upload and categories the fantastic information being created by so many different groups in this crisis, and give our clients and their families the information they need and activities that will help. 

It can be found at the link below- we recommend that you check it out!

https://ldcardiff.weebly.com/

Free sports activity week for disabled children in August