Direct payments can offer a great deal of flexibility but finding a Personal Assistant (PA) can be tricky and having enough hours to attract one can make things more difficult.

Together with the All Wales Forum of parents and carers we are hosting an event in person and online where you can learn more about how families across Wales have been creative in using hours in ways that open up more opportunities

The event is scheduled for 13th July at the Techniquest centre but you can join online using Zoom

See our latest newsletter here for details of activities for carers, free tablets for carers and how you can have your views listened to

February 2022 newsletter

For several years we have worked with our partners in local authorities and the third sector to agree an improved way to ensure a smooth transition pathway for people with Additional Learning Needs.

Please check out the Transitional planning proposals and take a few minutes to share your opinions - these are being signed off soon so please let us know any improvements you feel need to be made

after looking at the proposals please see the survey below

We regret to say that after a short illness our chair and trustee of many years, Pauline Young MBE has passed away

The lottery funded Connected Carers project has completed its 3 year funding and we are holding an online celebration to mark the event

It has proven so popular with carers we are determined to carry on supporting our members with more of the same and new activities in the coming years

We need your ideas and support to make this happen

We are updating our records to ensure that carers do not miss out on the many offers for help for carers currently available

We need your mobile number to send regular latest updates

Covid rates are higher than ever and it seems the rules on where we go, who we can see and how we can attend to basic needs are constantly changing

The latest guidelines from Public Health Wales can be found here

If in doubt don't go out!

Join us on Thursday 29th October for our 11am Pumpkin themed coffee morning on zoom and check out this months newsletter for some pumpkin recipes!!

To find out about transition events, funding for unpaid carers and much more please click below

April 2022 newsletter

An event to showcase what opportunities are available for children and young adults is being held on 29th April at Future Inns in Cardiff Bay

The past two years have been unprecedented.

We have  become used to unfamiliar and unsustainable ways of living and coping with reduced levels of support and services 

We have an opportunity to help influence the future but need your support 

As the new year begins we start another lockdown - what does this mean for us?

There are a number of schemes currently offering carers a free smartphone or tablet

Please read on for details

The Welsh Government have released £1,000,000 for carers. Details are to be announced in the coming days - see our newsletter and follow us on facebook to find out more.

Are you coping well with the covid 19 situation? Let us know below

OK the bug is back and not likely to go anywhere for some time yet!

Life must go on and the Parents' Federation is planning its own little fightback in order to help carers stay abreast of things and overcome the awful isolation and frustration

• Over the coming 6 months we hope to contact all members who we do not have up to date mobile numbers for in order that we can keep you updated with regular texts - if you already receive a text then please try to visit our facebook page or join us for a zoom chat on Thursdays!
• We shall be rolling out a variety of fun activities and 'tutorials' covering a widen range of things from crochet to dance to hula hooping and baking the perfect sponge! (if we can find a volunteer who can achieve the last point). as well as acquiring new skills you can meet other carers and learn from each other what coping mechanisms work for each other.
• We shall continue to update and improve our information resources here and on the Where You Stand website
• We shall continue to lobby authorities and agencies to let them know what carers are telling us matters to them- you're not alone so let us know what you feel is needed

Nobody knows what's around the corner. It's likely that 2021 will be a challenging year for us all-even after the virus has been calmed. The parents' Federation has almost 2000 families as members. It is run by and for carers themselves- if you would like to shape our future please email us at This email address is being protected from spambots. You need JavaScript enabled to view it.

The future will pose many problems as well as opportunities- if you want your voice to be heard then join us and have your say!