Covid-19 and supporting carers

Please help us to help you 

If you have any information or tips to share or wish to find out about support in your area please join us on social media and together we can help one another cope

Please spare a few minutes to complete this short online: survey

We can then share your experiences and ideas with policy makers.

Key issues raised so far include problems with shopping or a carers ID card that can be used at priority shopping times. Other issues include concerns about returning to school, threats and cutbacks to services after lockdown ends and increasing mental health issues.

Although many of you though report coping well at present an increasing number of families are telling us that they are starting to struggle. Please take a few minutes to complete the above survey if you haven't done already.

A summary of findings to date can be found here.

For the coming weeks (or months) we shall not be using the office base or holding social gatherings

Instead, staff will be working from home and maintaining our online information resources on a daily basis

 If you are not already following us on twitter, facebook or instagram then perhaps you would like to join us

Our news page has regular updates and information so don't forget to have a quick look to see what you have missed

Caring is difficult and isolating enough before this crisis so we hope to keep carers in touch with one another via social media and a zoom group- visit our facebook pages to learn more

Lots of useful information on the corona virus and support or services offered can be found on the government website as well as on the Cardiff Council and the Vale Council sites

The Welsh government have compiled a list of useful information, follow this link

Thinking of setting up a small groups to support people through this crisis? If you are, have a look at our news pages for some useful information

If you have any information or tips to share or wish to find out about support in your area please join us on social media and together we can help one another cope

Don't forget to spare a few minutes to complete our: survey

Above all stay safe and never forget- you are not alone!

 

Welcome to the Parents' Federation

 

For over 30 years Cardiff & the Vale Parents Federation has been supporting families caring for a relative with a learning disability.

It is run by parents, for parents who understand the difficulties that families and lifelong carers face. Almost 2000 local families are members.

Carers in Wales save the government over £8,000,000,000 each year!

We hold regular and informal carers social gatherings where you can meet other carers, share experiences and ideas (plus pick up some useful tips)

We can signpost you to sources of support and give information on your rights as a carer and what assistance you are entitled to receive

If you cannot find what you are looking for on this website or www.whereyoustand.org  call us on 029 2056 5917 or email us at This email address is being protected from spambots. You need JavaScript enabled to view it.

 

                          What Matters to You Matters to Us!

 

 

 

Understanding Disability Awards

Celebrating the inclusion of people with a learning disability - Don't Delay - Nominate Someone Now!!

Understanding Disability Awards

Every year we hold an awards ceremony to acknowledge and celebrate the efforts of those who have made an extra effort to include our children. We encourage nominations all year round to recognise the many hidden heroes who make our children's lives so much easier.

Last year was the 26th Anniversary Ceremony and was a fantastic success.

Over 120 attendees saw Awards made to some amazing people who deserve recognition. 

A full report is below

We are planning the next Awards ceremony now but due to the Covid-19 outbreak are putting things on hold.

We shall be seeking nominations regardless so while you are confined to your homes why not give some thought to someone that you know who deserves a mention?

Bookmark this page and visit us after Easter for an online nomination form

Dewis Information Guide

General information for families

 

 

Like our own Where You Stand guide, the Dewis guide has a wealth of information on opportunities and resources. It is a generic guide, not specific to learning disabilities but has plenty of useful links to follow and is well worth a look. It is being updated and added to constantly.

Connected Carers

Putting carers in touch with one another

Connected Carers

We have just embarked on a 3 year project that will give carers a chance to meet one another, enjoy social activities and therapies and learn more about the opportunities available. best of this is entirely free!

Autism

Support and useful contacts

Autism

Autism is a lifelong disability that affects the way a person relates to people around them.

 A great deal off support for individuals and families is available.

 Recent legislation and a better understanding of the condition help a person's life choices.

 

 

 

Information - Where YOU Stand

Information on learning disabilities - written by carers for carers

Our Where You Stand guide is an invaluable reference guide for parents, carers, disabled children and adults with learning disabilities in Cardiff and the Vale.

Carers in the Vale

Support for carers in the Vale of Glamorgan

Carers in the Vale

 The Vale of Glamorgan Council fund many schemes or projects that support carers to stay healthy and well informed.

Under the new Social Services and Wellbeing Act 2014, the definition of a care has been extended

You do not have to be providing daily care!

For more details follow this link.

Family Information Service - FIS

Support for families in your area

Family Information Service - FIS

Cardiff and the Vale of Glamorgan councils' both have a Family Information Team to keep families with a disabled child informed and up to date. the teams work closely together to ensure maximum impact. They produce newsletters and hold events and activities for families. 

Respite

A break from caring

Respite

Caring for a relative with a learning disability can take a huge toll on a family and it is essential that all parties can enjoy the occasional break using the range of respite provision.