Latest updates for June
Let us know how you are coping and what support you would like
We have a small online survey at
Please take a few minutes to complete at. it will help us to flag up what support is lacking along with any other key issues
So far we have had people tell us they need help with shopping and asked how they can get some sort of priority as a carer and we have had some interesting feedback
Really helpful website just set up
A group of professionals in the health team have put together a Facebook group and website for the COVID-19 crisis where we can upload and categories the fantastic information being created by so many different groups in this crisis, and give our clients and their families the information they need and activities that will help.
It can be found at the link below- we recommend that you check it out!
Some tips and assistance for anyone setting up a voluntary group
Latest news for carers
Some useful links to stay fit and healthy
Latest news for carers & Christmas treats!
latest news around the region
Updates on PIP, Transition, Connected carers and much more
What Carers are saying
We have been conducting an online survey to seek the views and experiences of our membership
The findings so far highlight that while many are coping fairly well, some families are starting to need urgent support
Key issues highlighted include the need for some form of carers' ID when shopping, problems with GP services, social isolation and difficulties in keeping relatives healthy and active.
Many are concerned about a premature return to 'normality' and the possible lack of services and support post Covid resulting from inevitable cutbacks and economic slowdown.
Those with younger children will face difficulties when the lock-down is eased as many children have become settled into living at home and out of school routines
Latest findings can be found here. We shall update these as and when we receive a significant number of new responses so if you feel that we are not capturing your views then please take a few minutes to complete the survey
Government launch new logo- Parents Federation have one too
You will doubtless have seen the sterling efforts of the GB government in developing a new 'brand' in the fight against Covid-19
The new logo and badge are a response to recognising that many carers are not NHS staff alone
How far this will address the shortcomings in support for the nations carers and nursing staff, or increase availability of PPE and tests for the virus it remains to be seen
However, in the spirit of doing our bit, the Parents' Federation is delighted to use local artist and NHS consultant, Susan White's new artwork on future publications, social media and website
We suspect that the work of Susan and her NHS colleagues in treating victims of the virus will play a much more important role in keeping people safe and saving lives than her art but we feel it looks a tad better that HMG's attempt
Keeping you informed
For the coming weeks (or months) we shall not be using the office base or holding social gatherings
Instead, staff will be working from home and maintaining our online information resources on a daily basis
If you are not already following us on twitter, facebook or instagram then perhaps you would like to
Caring is difficult and isolating enough before this crisis so we hope to keep carers in touch with one another via social media
If you have any information or tips to share or wish to find out about support in your area please join us on social media and together we can help one another cope
Above all stay safe and never forget- you are not alone!
Some useful links to stay fit and healthy
Do you have questions or need information re. covid 19 and it's impact on families?
Council for Disabled Children
The Council for Disabled Children (CDC) has launched two new email inboxes aimed to answer questions, gather resources and share information on Coronavirus and the impact on children and young people with Special Educational Needs and Disabilities (SEND).
details and links can be found below - please accept our apologies for the layout
Learn about services, opportunities and carers' rights
On Thursday 21st November there is a Carers Information event at the Carers Hub in Stanwell Road, Penarth
Come along for a chat and learn about the latest developments in services and support for unpaid carers over a free coffee and refreshments
Information Event to discuss Accommodation Options
On Wednesday the 20th November we are holding an information morning to highlight options available to people with a learning disability.
If your son or daughter is considering moving out of the family home or returning from an out of county college placement soon this will be of interest
July 2019 Parents' Voice newsletter
See what's on this month and catch up with the latest news for carers